First and foremost, we're about community. We're lucky enough to have tremendous support from not only our local community, but the greater histio and orphan disease communities as well.
We use 100% of our fundraising proceeds for specific causes. For example:
We have raised more than $13,000 with our three memorial runs (held September/October each year) for the Matthew and Andrew Akin Foundation.
We will offer two $1,500 in 2020 to girls pursuing animal science in their higher education.
Last December, our fundraiser on Phoebe's birthday raised $3000 for Hospice of the Chesapeake's "Days of Joy Program," which offered pediatric hospice families with a customized outing for family bonding, quality time, and shared celebration to help mitigate the adverse emotional and social impacts of their child’s illness.
We also partner with Be The Match because of the importance of bone marrow transplant and research. Registering as a potential donor is critical, especially for minorities.
We do recognize that not everyone can participate in these events, and we've had a lot of question from folks around the world asking how they can support us. If you wish to donate to our general fund (which will still be used to support services and causes like those above), we welcome your donation!