Fight For PhoebeSep 14, 2023Navigating the Storm: Our Family's HLH Odyssey, Part 2The Battle Begins: Chemotherapy and Steroid Treatment After Phoebe's diagnosis with Hemophagocytic Lymphohistiocytosis (HLH) at...
Fight For PhoebeSep 5, 2023Navigating the Storm: Our Family's HLH Odyssey, Part 1Life can take unexpected turns, and sometimes, you find yourself on a path you never could have imagined. That's precisely what happened...
Fight For PhoebeSep 1, 2023Unveiling September: Painting the Month Blue for Histiocytosis AwarenessAs we step into September, I wanted to share something close to my heart. Histiocytosis Awareness Month is here, and it means more to us...
Fight For PhoebeJun 27, 2023Navigating the Journey: A Parent's Guide to Rare DiseasesIntroduction When a child is diagnosed with a rare disease, it can feel like embarking on an uncertain journey. Parents are suddenly...